When you know someone who has, or might have Williams Syndrome, often your first reaction is to begin to search for information on the internet. If you’ve done this, you’ll no doubt have read that there are many possible symptoms. As a parent you’re often aware of the slow development of your child. You often […]
Williams Syndrome Symptoms
If you’re searching for this information the chances are that you know someone who has, or may have Williams Syndrome. My sister was only diagnosed in her 40s. My parents struggled to understand what was happening with their child… I hope most people are now diagnosed as children and have much better support from various […]
Linda – In Her Own Words
Tonight I (Meg) asked Linda if she would like to say anything to the world on her blog and she took over the keyboard: i am a lovely girl i would like a new bible and a new dinasaw if i had the money to buy them. So there you have it, Linda, at this […]
Euro FIFA and the Queen’s coronation of course!
If you’ve ever spent any time with someone who has Williams Syndrome you’ll probably recognise that one of the symptoms of Williams Syndrome is, talking to yourself. Well Linda doesn’t always talk to herself but she does talk with someone who’s not exactly in the room. You can imagine the intrigue when she proudly announces […]
Angry Birds
Linda, loves music, she loves dancing, she loves babies, she loves aeroplanes… These things, although an eclectic collection of passions, are probably familiar to many people who know someone with Williams Syndrome. Never has Linda been particularly interested in computer games, until now. I guess she is used to seeing me come home, sit on […]
At A Funeral
Funerals are often tough times for many people. It might be different but not necessarily easier for a Williams Syndrome adult. We have recently and unexpectedly lost an ageing auntie. We know she’d had a long life, we know it was a blessed release and we’re still going to miss her a lot! The funeral […]
Who decides how to spend their money?
The best of times or is it the worst of times… How many hours is it since I was celebrating Linda’s first paycheck? As a Williams Syndrome adult, payment for work is certainly an unexpected bonus but I’d totally failed to anticipate the consequences. Yes, she was pleased and proud. She was certainly the proud […]
This is exactly to my specification!
People with Williams Syndrome are noted for their verbal skills. They often have a wide vocabulary but use those words in an unusual way. We saw a great example of this today. Today was a special day. Linda was receiving her first ever pay check – as share in the profits of goods she’s made […]
So why won’t she walk on the gravel?
When we moved house, we knew there might be a bit of a problem parking cars… the driveway is long and thin and runs alongside the house and a long thin flowerbed. We end up parking the cars one behind another and there’s only a few inches of the concrete driveway free to walk on […]
Listening in to a Williams Syndrome Adult
One endearing feature of many Williams people is their fairly constant self-talk. Yes, they do have the gift to speak freely to friends and strangers in casual conversation and, when not socialising seem to continue a conversation with themselves. Just how or why that Williams Syndrome genetic deletion determines that Linda talks to herself is […]