Getting up is a staged process in our household. I pass Linda’s bedroom door on the way downstairs and give a knock before entering to wake her from sleep. She stirs and, given half a chance crawls back under the duvet – no chance – it’s time to get up. I make her a cup … Read more
We recently bought this book: “Understanding Williams Syndrome: Behavioral Patterns and Interventions” by Eleanor Semel and Sue R. Rosner as the title and description on Amazon made it sound like just what we wanted to read – an expert text on Williams Syndrome but also pitched at parents and carers. It also promised to both … Read more
We all know that children or even adults with disabilities learn things by doing things. Linda has been going to cookery classes for a few weeks now and turning out some delicious dishes! My problem here, and yes, this is all mine, is letting her get on with learning how to do this. When you … Read more
Tonight we were doing the washing up and Linda was watching birds in the garden as she wiped a glass with the tea towel. And there it was again. Another example of that wonderful turn of phrase that Williams Syndrome adults are so reknowned for… as she exclaimed: “Well stone me, with a feather!”. I’m … Read more
If you are living or working with someone who you suspect has Williams Syndrome, the chances are that you’ll be talking with a medical specialist about this at some stage soon. You may discuss the typical signs and symptoms of Williams Syndrome and you can certainly read our other articles on this site. It won’t … Read more
When you know someone who has, or might have Williams Syndrome, often your first reaction is to begin to search for information on the internet. If you’ve done this, you’ll no doubt have read that there are many possible symptoms. As a parent you’re often aware of the slow development of your child. You often … Read more
If you’ve ever entered “Williams Syndrome” into an internet search engine you’ve probably also received an answer that describes it as a complex condition caused by a microdeletion of a small number of genes from one copy of Chromosome 7, but what does that mean? Williams Syndrome Genetics The many possible symptoms of Williams Syndrome … Read more
If you’re searching for this information the chances are that you know someone who has, or may have Williams Syndrome. My sister was only diagnosed in her 40s. My parents struggled to understand what was happening with their child… I hope most people are now diagnosed as children and have much better support from various … Read more
Tonight I (Meg) asked Linda if she would like to say anything to the world on her blog and she took over the keyboard: i am a lovely girl i would like a new bible and a new dinasaw if i had the money to buy them. So there you have it, Linda, at this … Read more
If you’ve ever spent any time with someone who has Williams Syndrome you’ll probably recognise that one of the symptoms of Williams Syndrome is, talking to yourself. Well Linda doesn’t always talk to herself but she does talk with someone who’s not exactly in the room. You can imagine the intrigue when she proudly announces … Read more