I blogged previously about Linda’s lusting after a xylophone she saw while on holiday. Knowing how much people with Williams Syndrome love music and musical instruments this didn’t surprise me. Truth was, the said xylophone was well overpriced and Linda, spending her pocket money on other gifts never got close to buying the instrument. But […]
New website gives hope to parents of special needs children.
(PRWEB) May 25, 2001 Jan Bedell has worked in the Neurodevelopmental field for over 8 years and is the owner of Little Giant Steps. Her company assists parents with techniques to help their children who suffer with learning difficulties. With the new website at http://www.LittleGiantSteps.net, she can now reach out to all parents of special […]
What Does Williams Syndrome Mean?
Linda, my sister, is a woman in her 40s. For more than 10 years I have suspected she has Williams Syndrome. Nine months ago a FISH test finally confirmed that Linda has Williams Syndrome. Since then I’ve certainly discussed this with Linda on many occasions. I’ve even tried to explain about a genetic deletion using […]
ACM Lifting Lives Music Camp for Williams Syndrome
ACM Lifting Lives Music Camp for People with Developmental Disabilities The ACM Lifting Lives Music Camp is a week-long residential camp designed for people with Williams syndrome and other developmental disabilities who are at least 16 years-old. June 26-July 1, 2011 Fun, Musical Experience Also Focuses on Social Skills and Independence Campers celebrate music by […]
Carrie Underwood and Darius Rucker have volunteered for the ACM Music Camp this year.
(RTTNews) – Carrie Underwood and Darius Rucker have volunteered for the ACM Music Camp this year. Underwood and Rucker will be joining previously announced volunteer Gary Allan at the second annual ACM Lifting Lives Music Camp, funded by the ACM and offered through the Vanderbilt Kennedy Center to help people with Williams syndrome and other […]
All At Sea
Aboard the ferry on the journey home… The low rumble of the engines alerts me to the fact that we are have left our berth and are under way. The journey home has started. Linda gazes out of a window at the sea… “You should see this!” she exclaims. “We’re moving!” Her excitement is palpable […]
That Worthy Prize or An Immediate Reward?
Update – 24 hours later: Ah… Much as a multicoloured xylophone is extremely desirable to a musically-minded adult with Williams Syndrome, we haven’t yet mastered delayed gratification. Linda’s concept of the world is one of infinite abundance and to observe her behaviour, she definitely believes she can have her cake and eat it. And why […]
Vince Neil-Autographed Jay Turser Guitar Brings in $1400.00 for the Skylar Neil Foundation
Garden City, NY (PRWEB) May 24, 2005 Jay Turser Guitars, distributed by Music Industries Corp., donated a JT-Warlord Electric Guitar to the Ninth Annual Skylar Neil Memorial Charity Golf Tournament and Auction, held May 5, 2005, at the Malibu Country Club, in Malibu, California. The final bid on the Jay Turser Warlord instrument, which was […]
A Worthy Prize for a Williams Syndrome Adult?
For most of her life, Linda has never handled money. As an adult with Williams Syndrome she was, typically, very poor with any numerical concepts. Counting up in ones was about the limit of her skills. When it came to money, every item in the world could be bought with a one pound coin or […]
The Lizard Whisperer
People with Williams Syndrome are often drawn to subjects, almost obsessively. Sometimes the subjects are inanimate, often mechanical – fans, planes, radios. Other times they are very animate, people (of course), animals and young/babies are often a particular source of fascination. Linda loves animals and has books and books and books about them. She’s usually […]