17-year-old, George Rautenbach, who has Williams syndrome proves to us in this interview that he too can excel and enjoy life just like you and me.
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The Arizona Canyon Region Spring picnic was organized for families and individuals born with the genetic disorder Williams Syndrome. For more information on …
Video Rating: 4 / 5
Longest neck ever.
Living with Williams syndrome in South Africa where limited awareness
prevails, are certainly a serious challenge for individuals and their
families whereas in USA and UK those associations supporting individuals
with WS brings forward astonishing opportunities resulting in as near a
normal life as possible within these great support groups. Likewise
George(17years old); Johan Coetzee previously for East London, living in
Namibia since Sept 2009, little opportunities apart from those in his
hometown becomes his support group. Unfortunately, when starting grade one
back in 2003 (Johan already nine years of age), his school in East London
advised us that he could no longer attend school due to his lack of
abilities to learn reading/writing: SO SAD.
Looks like a Lord of the Rings convention
Does anyone know the song at the end ? I teally like it but cant find any
info :'(
hello am Sabrina am 26 and I have willams syndrome thank u for all u do for
my people I hope u can help as meny as u can
They are so cute
They all look so similar. Genetic truly are amazing.
They say Williams Syndrome is the opposite to Aspergers Syndrome.
People with Aspergers Symdrome are known to be introverted & have high IQ,
whereas Williams Syndrome are known to be sociable but have low IQ.
love this :)
where are you located will be moving to az soon my son is 2 1/2 yrs old n
has williams
It was suggested by someone that the bridesmaid at the UK Royal Wedding
[Grace van Cutsem] has William’s syndrome.
To the parents of children with WS: Did any of your children have foot
deformities? I am trying to find a diagnosis for my son and he has almost
all of the symptoms of Williams, but also has congenital vertical talus in
one foot/oblique talus in the other. Any help you could offer would be
appreciated.
Is this why you come online? Sentences have the reverse effects of face to
face conversations. It is sometimes hard to interpret what somebody has
written. The sentences may seem very cheerful and friendly when in fact
they have different meaning to one’s own interpretation. The online
situation is very artificial, yet it is a way of practicing too
socialisation. Unfortunately it does not always work this way in “real”
life.
i have an irish couzin with williams syndrome.she is over 17 and lives very
happily.i dont know much about her but thinking of her makes me happy
hi i was wondering if you could email me with any info or sites you know of
… i have a two and a half year old beautiful little girl with williams
syndrome and i totally understand the issue cause none of the doctors or
anyone even had barely heard of it before . i live in a city in ontario
canada and nobody here has even heard of it so its really hard for me to
even explain to my friends how special she really is … i would love to
hear about or even one day meet other children with williams
They are all so beautiful omg
Amber, this is a GREAT video! Beautiful job. My own Meems loved the animal
faces.
Hi, my name is Tiffany, I have a 13 year old daughter with William
syndrome. It has been a rough 13 years, fortunately not any life
threatening experiences but definitely feel alone. I am one of those
parents you speak of who never gets any answers because no one has any
understanding of WS. I would love to get involved with other WS families,
do you know of anybody or any groups in the south Florida area? I would
even settle for a conversation over the phone! I need a little guidance and
s
My son evan is three years old . And at three months old we learned he had
williams syndrome.. He is a blessing and i a one lucky mama to have this
special gift from god.e
@megan26643 Hi Megan, If you want to talk I would love to talk to you you
can e-mail me at Tweety7249@yahoo.com I will send you my number. I do have
a few names of people in florida. Have you tried contacting the Williams
Syndrome association they will be able to refer you to your Regional Chair.
If you want to talk please drop me a line and I will call you or send you
my number
I know someone who has a boy with Williams syndrome. The mother had him at
a young age. She is very mean to him. She smacks him a lot and screams at
him. He’s a very sweet boy. So loving and cheerful. I think his mother
needs to take some classes or something. She had another son who does not
have it and she treats him great. It’s not fair. I can’t stand to be around
her, I’m afraid the next time she smacks him across the mouth I just might
punch her in the face.
I love that you are working so hard to spread awareness. Thank you!!
I want to say that a lady I work with didn’t find out until her daughter
was 40 years old that she had WS, the daughter is now 52. She’s beat all
the odds that the doctors said she wouldn’t be able to. When she was
smaller the doctors couldn’t give her any real reason why her daughter was
not developing, walking, talking eating, etc. Now her toughest battle right
now is that her elderly father has passed on and her mother is unable to
care for her anymore, this for her is very disturbing.
I wish people were more aware of what Williams is. My brother wasn’t
diagnosed till he was 18. By that time he had finished school only by being
moved along with his age group for years. It wasn’t till he decided to go
to the local College that he learned to read. Awareness of this disorder is
important in order to give the kids who have it a better shot at a
wonderful life.
my baby girl was born dec 6 2010 and has remained in the hospital since.
She has been in the icu on and off life support. She was just diagnosed
with williams syndrome. What to do from here i do not know. is there any
good resources in seattle?
my daughters 6yrs old and has WS.. its good to know theres more people out
there. What lovely kids they are. 🙂
In my comment it is written: sympathetic, very cheerful and friendly IF
only showing those traits, then it would be a gift NOT a syndrome.
Unfortunately, there are all other associated factors which are included as
part of the WS and make it a syndrome instead of a “gift”. I write to you,
I do not know you, maybe too I put myself in harms way. How do people
become acquainted to other people? By being social and sociable and that is
the positive side of WS. Good day to you.
My friend has Williams Syndrome he is cool a lot of people don’t like him
but they are jerks.I just found out what is wrong with him I learning more
and more about him.